IntroductionHave you ever heard of Juvenile MyoclonicEpilepsy? If you put the meaning of thosewords together it will make more sense. These words together you get a seizuredisorder that has jerking and twitching happening in your childhood to yourlate teenage years. Most people whenfalling asleep have hypnic jerks which are not related to epilepsy, but it canshow what it’s like to live for someone with JME.
JME jerks are stronger,longer and can happen at any time compared to hypnic jerks. Even though JME ismore common in the ages of 4-16. The target audience I chose for the healthpromotion and injury prevention on JME is teenagers aged 13-18. People with JMEdon’t want reoccurring seizures because it prevent them from driving, performingwell in school. And even daily movements like picking up a drink. Everyone isin charge of changing their lifestyle and being seizure free the #1 priorityfor someone with Juvenile Myoclonic Epilepsy. ResearchTheissue with JME is that most teenagers don’t take it seriously or don’t have theknowledge and teaching to care for their health to prevent seizures. Most ofthe time JME is not diagnosed until the teenage years.
I know this because ofmy own experience, I had many myoclonic jerks for years and I thought it wassomething normal and never thought anything was wrong with me until I had aTonic-Clonic seizure. According to (Epilepsy Foundation of America. “there aretwo very common seizure-precipitating factors – Sleep deprivations and stress”.
(2017). Not getting enough sleep, beingstressed, and continuously not taking medication after being diagnosed are thethree factors that put teenagers with JME more at risk for seizures. From my understanding JME is lifelong and isvery unlikely to go away.
It is not recommended to stop taking medication forJME even if you have been seizure free for years. From my experience I was toldthat I will be taking my medications for the rest of my life. Even if teenagersjust take their mediations it’s not 100% going to prevent another seizure.Teenagers that have JME also need to change their lifestyle for the better of theirhealth.
According to Epilepsy Society “A balanced diet from different foodgroups helps the body and brain to function, helping us to stayhealthy. This may help reduce the risk of seizures for some people withepilepsy”. (2014). Thus meaning having a good diet does not only give you moreenergy, it will affect your overall health. This will affect your sleep andstress positively. By lowering these it will bring the chances of reoccurring seizures.
Lastly Teaching ResourcesToteach a patient on how to be seizure free I will teach them the make SMARTgoals. In the span of one week client will use a tracker to track the amount ofsleep they get, and tracking when they take their medication so they don’t missany. They will also be shown a brochure that informs them what JuvenileMyoclonic Epilepsy is, why they are at risk, and the types of seizures. EvaluationsWhendone teaching I will be able to evaluate my teaching by quizzing my patients. Iwill also get them to demonstrate on how they can organize taking theirmedications on time. What kind of meals are appropriate.
What techniques theyare going to use to be stress free. Lastly I will ask them what JuvenileMyoclonic Epilepsy and what have they learned about it. ConclusionIn the end, by evaluating my patient I will be able to determine ifthey are successful. If they are able to show and demonstrate what I havetaught about Juvenile Myoclonic Epilepsy and how to prevent seizures they goalhas been reached.